ERKNet

The European Rare Kidney Disease Reference Network
  

Thematic Area:  Transition to Adult Care

 
The following guidance document is endorsed by the Workgroup based on standardized reviews:

Transition from pediatric to adult renal services: Consensus statement by ISN and IPNA

Kidney Int 2011; 80:704-7.

 

Core Recommendations:
  1.  Transition structures should be implemented in all centers.
  2.  Transition should start between 10 and 14 years. 
  3.  Core elements: Patient education, information transfer, assessment of transition readiness, family support, shared patient visits or conferences of pediatricians and nephrologists.
  4.  Adequate financing of transition is needed. 
 
Comments by Evaluators:
  •  The guideline is more a Consensus Statement. 
  •  More peer review is needed. 
  •  Guideline has to be adopted to local health systems.  
  •  Not all elements can be implemented everywhere due to restricted resources.

 

 
European Reference Networks
ERKNet is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Commission.
For more information about the ERNs and the EU health strategy, please visit http://ec.europa.eu/health/ern