ERKNet

The European Rare Kidney Disease Reference Network

  

Workgroup Pediatric CKD & Dialysis

Our Pediatric CKD and Dialysis work group brings together experts from all over Europe, both from pediatric and adult dialysis centers, and also includes patient representatives.

We will develop guidelines and educational material for CKD and dialysis management in close collaboration with the ESPN working groups. Outcome Indicators will be defined and evaluated in cooperation with the SONG Initiative.

We will work with other ERKNet groups to develop webinars and CME meetings, in collaboration with dialysis nurses and dietitians, to provide a ‘holistic approach’ to the management of end-stage kidney disease.

Our experts will provide online consulting to European pediatric CKD and dialysis centers within the ERKNet Consortium, and extending to all European countries.

We will aim to define research goals in accordance with patients’ needs and provide a platform for common research projects within the group.


WorkGroup Members

Rukshana Shroff  Speaker London, United Kingdom, Great Ormond Street Hospital  » Ped. center
Claus Peter Schmitt  Co-Chair Heidelberg, Germany, University Hospital  » Ped. center
Justine Bacchetta  Co-Chair Lyon, France, Hôpital Femme Mère Enfant & Université de Lyon  » Ped. center
Jaap Groothoff  Amsterdam, Netherlands, Amsterdam, Academic Medical Center (AMC)  » Ped. center
Michiel Oosterveld  Amsterdam, Netherlands, Amsterdam, Academic Medical Center (AMC)  » Ped. center
Gema Ariceta  Barcelona, Spain, Barcelona Hospital Universitari Vall d'Hebron  » Ped. center
Larissa Kerecuk  Birmingham, United Kingdom, Birmingham Women´s and Children´s Hospital  » Ped. center
Lutz Weber  Cologne, Germany, University Hospital  » Ped. center
Rainer Büscher  Essen, Germany, University Children`s Hospital  » Ped. center
Ilona Zagozdzon  Gdansk, Poland, University Clinical Centre Gdansk  » Ped. center
Francesca Lugani  Genova, Italy, Istituto Giannina Gaslini  » Ped. center
Enrico Verrina  Genova, Italy, Istituto Giannina Gaslini  » Ped. center
Thomas Henne  Hamburg, Germany, UKE University Hospital  » Ped. center
Sebastian Loos  Hamburg, Germany, UKE University Hospital  » Ped. center
Anne Mühlig  Hamburg, Germany, UKE University Hospital  » Ped. center
Jun Oh  Hamburg, Germany, UKE University Hospital  » Ped. center
Raphael Schild  Hamburg, Germany, UKE University Hospital  » Ped. center
Florian Thiel  Hamburg, Germany, UKE University Hospital  » Ped. center
Dieter Haffner  Hannover, Germany, Hannover Medical School  » Ped. center
Martin Kreuzer  Hannover, Germany, Hannover Medical School  » Ped. center
Giulia Bassanese  Heidelberg, Germany, University Hospital  » Ped. center
Franz Schaefer  Heidelberg, Germany, University Hospital  » Ped. center
Tanja Wlodkowski  Heidelberg, Germany, University Hospital  » Ped. center
Tuula Hölttä  Helsinki, Finland, Children´s Hospital, Helsinki University Hospital  » Ped. center
Timo Jahnukainen  Helsinki, Finland, Children´s Hospital, Helsinki University Hospital  » Ped. center
Hannu Jalanko  Helsinki, Finland, Children´s Hospital, Helsinki University Hospital  » Ped. center
Paula Seikku  Helsinki, Finland, Children´s Hospital, Helsinki University Hospital  » Ped. center
Elisa Ylinen  Helsinki, Finland, Children´s Hospital, Helsinki University Hospital  » Ped. center
Noel Knops  Leuven, Belgium, University Hospitals Leuven  » Ped. center
Wesley Hayes  London, United Kingdom, Great Ormond Street Hospital  » Ped. center
Daljit Hothi  London, United Kingdom, Great Ormond Street Hospital  » Ped. center
Kjell Tullus  London, United Kingdom, Great Ormond Street Hospital  » Ped. center
Amrit Kaur  Manchester, United Kingdom, Manchester University Foundation Trust  » Ped. center
Dean Wallace  Manchester, United Kingdom, Manchester University Foundation Trust  » Ped. center
Fabio Paglialonga  Milano, Italy, Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico, University of Milan  » Ped. center
Linda Koster-Kamhuis  Nijmegen, Netherlands, Radboud UMC  » Ped. center
Enrico Vidal  Padova, Italy, Azienda Ospedaliera di Padova  » Ped. center
Natalie Biebuyck  Paris, France, Necker-Enfants Malades University Hospital  » Ped. center
Saoussen Krid  Paris, France, Necker-Enfants Malades University Hospital  » Ped. center
Remi Salomon  Paris, France, Necker-Enfants Malades University Hospital  » Ped. center
Isabella Guzzo  Rome, Italy, Rome, Bambino Gesù Children's Hospital  » Ped. center
Margherita Baldassarri  Siena, Italy, University Hospital  » Adult center
Anna Maria Pinto  Siena, Italy, University Hospital  » Adult center
Alessandra Renieri  Siena, Italy, University Hospital  » Adult center
Peter Barany  Stockholm, Sweden, Karolinska University Hospital  » Adult center
Maria Herthelius  Stockholm, Sweden, Karolinska University Hospital  » Ped. center
Marc Lilien  Utrecht, Netherlands, University Medical Centre  » Ped. center
Antonia Cabrera  Patient representative  
Susana Carrajal  Patient representative  
Claudia Sproedt  Patient representative FEDERG 
Marieke van Meel  Patient representative