Workgroup Pediatric CKD & Dialysis

Our Pediatric CKD and Dialysis work group brings together experts from all over Europe, both from pediatric and adult dialysis centers, and also includes patient representatives.

We will develop guidelines and educational material for CKD and dialysis management in close collaboration with the ESPN working groups. Outcome Indicators will be defined and evaluated in cooperation with the SONG Initiative.

We will work with other ERKNet groups to develop webinars and CME meetings, in collaboration with dialysis nurses and dietitians, to provide a ‘holistic approach’ to the management of end-stage kidney disease.

Our experts will provide online consulting to European pediatric CKD and dialysis centers within the ERKNet Consortium, and extending to all European countries.

We will aim to define research goals in accordance with patients’ needs and provide a platform for common research projects within the group.


WorkGroup Members

Justine Bacchetta  Speaker Lyon, France,
Hôpital Femme Mère Enfant & Université de Lyon 
» Ped. center
Claus Peter Schmitt  Co-Chair Heidelberg, Germany,
University Hospital 
» Ped. center
Jaap Groothoff  Amsterdam, Netherlands,
Amsterdam, Academic Medical Center (AMC) 
» Ped. center
  Michiel Oosterveld  Amsterdam, Netherlands,
Amsterdam, Academic Medical Center (AMC) 
» Ped. center
Rik Westland  Amsterdam, Netherlands,
Amsterdam, Academic Medical Center (AMC) 
» Ped. center
Gema Ariceta  Barcelona, Spain,
Hospital Universitari Vall d'Hebron 
» Ped. center
  Victor Beltran  Barcelona, Spain,
Hospital Universitari Vall d'Hebron 
» Ped. center
  Marina Muñoz  Barcelona, Spain,
Hospital Universitari Vall d'Hebron 
» Ped. center
  Larissa Kerecuk  Birmingham, United Kingdom,
Birmingham Women´s and Children´s Hospital 
» Ped. center
Lutz Weber  Cologne, Germany,
University Hospital 
» Ped. center
Rainer Büscher  Essen, Germany,
University Children`s Hospital 
» Ped. center
  Ilona Zagozdzon  Gdansk, Poland,
University Clinical Centre Gdansk 
» Ped. center
Francesca Lugani  Genova, Italy,
Istituto Giannina Gaslini 
» Ped. center
Giorgio Piaggio  Genova, Italy,
Istituto Giannina Gaslini 
» Ped. center
Enrico Verrina  Genova, Italy,
Istituto Giannina Gaslini 
» Ped. center
  Thomas Henne  Hamburg, Germany,
University Medical Center Hamburg-Eppendorf 
» Ped. center
  Sebastian Loos  Hamburg, Germany,
University Medical Center Hamburg-Eppendorf 
» Ped. center
Anne Mühlig  Hamburg, Germany,
University Medical Center Hamburg-Eppendorf 
» Ped. center
Jun Oh  Hamburg, Germany,
University Medical Center Hamburg-Eppendorf 
» Ped. center
Raphael Schild  Hamburg, Germany,
University Medical Center Hamburg-Eppendorf 
» Ped. center
Dieter Haffner  Hannover, Germany,
Hannover Medical School 
» Ped. center
Anette Melk  Hannover, Germany,
Hannover Medical School 
» Ped. center
Franz Schaefer  Heidelberg, Germany,
University Hospital 
» Ped. center
  Tuula Hölttä  Helsinki, Finland,
Children´s Hospital, Helsinki University Hospital 
» Ped. center
  Timo Jahnukainen  Helsinki, Finland,
Children´s Hospital, Helsinki University Hospital 
» Ped. center
  Juuso Tainio  Helsinki, Finland,
Children´s Hospital, Helsinki University Hospital 
» Ped. center
  Elisa Ylinen  Helsinki, Finland,
Children´s Hospital, Helsinki University Hospital 
» Ped. center
Noel Knops  Leuven, Belgium,
University Hospitals Leuven 
» Ped. center
Wesley Hayes  London, United Kingdom,
Great Ormond Street Hospital 
» Ped. center
  Daljit Hothi  London, United Kingdom,
Great Ormond Street Hospital 
» Ped. center
Lesley Rees  London, United Kingdom,
Great Ormond Street Hospital 
» Ped. center
Rukshana Shroff  London, United Kingdom,
Great Ormond Street Hospital 
» Ped. center
Kjell Tullus  London, United Kingdom,
Great Ormond Street Hospital 
» Ped. center
  Amrit Kaur  Manchester, United Kingdom,
Manchester University Foundation Trust 
» Ped. center
  Dean Wallace  Manchester, United Kingdom,
Manchester University Foundation Trust 
» Ped. center
Fabio Paglialonga  Milano, Italy,
IRCCS Ca' Granda Ospedale Maggiore Policlinico 
» Ped. center
Sara Testa  Milano, Italy,
IRCCS Ca' Granda Ospedale Maggiore Policlinico 
» Ped. center
Linda Koster-Kamhuis  Nijmegen, Netherlands,
Radboud UMC 
» Ped. center
Mattia Parolin  Padova, Italy,
Azienda Ospedaliera di Padova 
» Ped. center
  Natalie Biebuyck  Paris, France,
Necker-Enfants Malades University Hospital 
» Ped. center
  Remi Salomon  Paris, France,
Necker-Enfants Malades University Hospital 
» Ped. center
  Krid Saoussen  Paris, France,
Necker-Enfants Malades University Hospital 
» Ped. center
Isabella Guzzo  Rome, Italy,
Rome, Bambino Gesù Children's Hospital 
» Ped. center
  Margherita Baldassarri  Siena, Italy,
University Hospital 
» Adult center
Anna Maria Pinto  Siena, Italy,
University Hospital 
» Adult center
  Alessandra Renieri  Siena, Italy,
University Hospital 
» Adult center
Kajsa Asling Monemi  Stockholm, Sweden,
Karolinska University Hospital 
» Ped. center
Peter Barany  Stockholm, Sweden,
Karolinska University Hospital 
» Adult center
Bogna Niwinska-Faryna  Stockholm, Sweden,
Karolinska University Hospital 
» Ped. center
  Marc Lilien  Utrecht, Netherlands,
University Medical Centre 
» Ped. center
  Tanja Kersnik Levart  Affiliated partner Ljubljana, Slovenia,
University Medical Centre 
» Ped. center
  Tara Raftery  External Children's HealthIreland (CHI) at Temple Street 
  Antonio Cabrera Cantero  Patient representative http://hipofam.org/ (Hypomagnesemia) 
  Susana Carvajal Arjona  Patient representative http://hipofam.org/ (Hypomagnesemia) 
  Marieke van Meel  Patient representative http://nephceurope.eu (Nephrotic syndrome) 

European Reference Networks
ERKNet is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Commission.
For more information about the ERNs and the EU health strategy, please visit http://ec.europa.eu/health/ern