for Physicians
for Patients

Workgroup Pediatric CKD & dialysis

Our Pediatric CKD and Dialysis work group brings together experts from all over Europe, both from pediatric and adult dialysis centers, and also includes patient representatives.

We will develop guidelines and educational material for CKD and dialysis management in close collaboration with the ESPN working groups. Outcome Indicators will be defined and evaluated in cooperation with the SONG Initiative.

We will work with other ERKNet groups to develop webinars and CME meetings, in collaboration with dialysis nurses and dietitians, to provide a ‘holistic approach’ to the management of end-stage kidney disease.

Our experts will provide online consulting to European pediatric CKD and dialysis centers within the ERKNet Consortium, and extending to all European countries.

We will aim to define research goals in accordance with patients’ needs and provide a platform for common research projects within the group.

Meeting minutes

WG Meeting 21/10/2020 & 21/04/2021 (please log in with your user account to view the minutes)

WorkGroup Members

Claus Peter Schmitt  Speaker Heidelberg, Germany,
University Hospital  		» Ped. center
Jerome Harambat  Co-Chair Bordeaux, France,
University Hospital  		» Ped. center
Justine Bacchetta  Co-Chair Lyon, France,
Hôpital Femme Mère Enfant & Université de Lyon  		» Ped. center
Jaap Groothoff  Amsterdam, Netherlands,
Amsterdam, Academic University Medical Center (AUMC)  		» Ped. center
Michiel Oosterveld  Amsterdam, Netherlands,
Amsterdam, Academic University Medical Center (AUMC)  		» Ped. center
Rik Westland  Amsterdam, Netherlands,
Amsterdam, Academic University Medical Center (AUMC)  		» Ped. center
  Marta Moreno Jimenez  Barcelona, Spain,
Hospital San Joan de Deu  		» Ped. center
Gema Ariceta  Barcelona, Spain,
Hospital Universitari Vall d'Hebron  		» Ped. center
  Gema Ariceta  Barcelona, Spain,
Hospital Universitari Vall d'Hebron  		» Ped. center
Victor Beltran Perez  Barcelona, Spain,
Hospital Universitari Vall d'Hebron  		» Ped. center
  Alejandro Cruz  Barcelona, Spain,
Hospital Universitari Vall d'Hebron  		» Ped. center
  Marina Muñoz  Barcelona, Spain,
Hospital Universitari Vall d'Hebron  		» Ped. center
  Dominik Müller  Berlin, Germany,
Charité - Universitätsmedizin Berlin  		» Ped. center
  Julia Thumfart  Berlin, Germany,
Charité - Universitätsmedizin Berlin  		» Ped. center
Astrid Gordon-Dubrasquet  Bordeaux, France,
University Hospital  		» Ped. center
Adrian Catalin Lungu  Bucharest, Romania,
Fundeni Clinical Institute  		» Ped. center
  István Máttyus  Budapest, Hungary,
Semmelweis University  		» Ped. center
George Reusz  Budapest, Hungary,
Semmelweis University  		» Ped. center
  Péter Sallay  Budapest, Hungary,
Semmelweis University  		» Ped. center
  Attila Szabó  Budapest, Hungary,
Semmelweis University  		» Ped. center
Kalman Tory  Budapest, Hungary,
Semmelweis University  		» Ped. center
Kathrin Burgmaier  Cologne, Germany,
University Hospital  		» Ped. center
Max Liebau  Cologne, Germany,
University Hospital  		» Ped. center
Thomas Elung Jensen  Copenhagen, Denmark,
Rigshospitalet University Hospital  		» Adult center
Hanne Nørgaard  Copenhagen, Denmark,
Rigshospitalet University Hospital  		» Ped. center
Ida Maria Schmidt  Copenhagen, Denmark,
Rigshospitalet University Hospital  		» Ped. center
Dorota Drozdz  Cracow, Poland,
University Children's Hospital of Cracow  		» Ped. center
  Monika Miklaszewska  Cracow, Poland,
University Children's Hospital of Cracow  		» Ped. center
  Atif Awan  Dublin, Ireland,
Children`s Health Ireland (CHI) at Temple Street  		» Ped. center
Anja Büscher  Essen, Germany,
University Children`s Hospital  		» Ped. center
Rainer Büscher  Essen, Germany,
University Children`s Hospital  		» Ped. center
Lars Pape  Essen, Germany,
University Children`s Hospital  		» Ped. center
Ilona Zagozdzon  Gdansk, Poland,
University Clinical Centre Gdansk  		» Ped. center
Edoardo La Porta  Genoa, Italy,
Istituto Giannina Gaslini  		» Ped. center
Francesca Lugani  Genoa, Italy,
Istituto Giannina Gaslini  		» Ped. center
Giorgio Piaggio  Genoa, Italy,
Istituto Giannina Gaslini  		» Ped. center
Enrico Verrina  Genoa, Italy,
Istituto Giannina Gaslini  		» Ped. center
Joke Dehoorne  Ghent, Belgium,
UZ Ghent  		» Ped. center
  Ann Raes  Ghent, Belgium,
UZ Ghent  		» Ped. center
Johan Vande Walle  Ghent, Belgium,
UZ Ghent  		» Ped. center
Charlotte Bootsma  Groningen, Netherlands,
University Medical Center  		» Ped. center
Charlotte Bootsma-Robroeks  Groningen, Netherlands,
University Medical Center  		» Ped. center
  Thomas Henne  Hamburg, Germany,
University Medical Center Hamburg-Eppendorf  		» Ped. center
  Sebastian Loos  Hamburg, Germany,
University Medical Center Hamburg-Eppendorf  		» Ped. center
Anne Mühlig  Hamburg, Germany,
University Medical Center Hamburg-Eppendorf  		» Ped. center
Jun Oh  Hamburg, Germany,
University Medical Center Hamburg-Eppendorf  		» Ped. center
Raphael Schild  Hamburg, Germany,
University Medical Center Hamburg-Eppendorf  		» Ped. center
Jens Drube  Hannover, Germany,
Hannover Medical School  		» Ped. center
Anette Melk  Hannover, Germany,
Hannover Medical School  		» Ped. center
Stefanie Haeberle  Heidelberg, Germany,
University Hospital  		» Ped. center
Franz Schaefer  Heidelberg, Germany,
University Hospital  		» Ped. center
Tanja Wlodkowski  Heidelberg, Germany,
University Hospital  		» Ped. center
Elke Wühl  Heidelberg, Germany,
University Hospital  		» Ped. center
  Tuula Hölttä  Helsinki, Finland,
Children´s Hospital, Helsinki University Hospital  		» Ped. center
  Juuso Tainio  Helsinki, Finland,
Children´s Hospital, Helsinki University Hospital  		» Ped. center
Noel Knops  Leuven, Belgium,
University Hospitals Leuven  		» Ped. center
Nina Battelino  Ljubljana, Slovenia,
University Medical Centre  		» Ped. center
Tanja Kersnik Levart  Ljubljana, Slovenia,
University Medical Centre  		» Ped. center
Gregor Novljan  Ljubljana, Slovenia,
University Medical Centre  		» Ped. center
Rina Rus  Ljubljana, Slovenia,
University Medical Centre  		» Ped. center
  Monika Pawlak-Bratkowska  Lodz, Poland,
Instytut  		» Ped. center
  Małgorzata Stańczyk  Lodz, Poland,
Instytut  		» Ped. center
Marcin Tkaczyk  Lodz, Poland,
Instytut  		» Ped. center
Bruno Ranchin  Lyon, France,
Hôpital Femme Mère Enfant & Université de Lyon  		» Ped. center
Anne-Laure Sellier-Leclerc  Lyon, France,
Hôpital Femme Mère Enfant & Université de Lyon  		» Ped. center
Mar Espino Hernandez  Madrid, Spain,
Hospital Universitario 12 de Octubre  		» Ped. center
  Julia Martin  Madrid, Spain,
Hospital Universitario 12 de Octubre  		» Ped. center
  Gianluigi Ardissino  Milan, Italy,
IRCCS Ca' Granda Ospedale Maggiore Policlinico  		» Ped. center
Giovanni Montini  Milan, Italy,
IRCCS Ca' Granda Ospedale Maggiore Policlinico  		» Ped. center
Fabio Paglialonga  Milan, Italy,
IRCCS Ca' Granda Ospedale Maggiore Policlinico  		» Ped. center
Sara Testa  Milan, Italy,
IRCCS Ca' Granda Ospedale Maggiore Policlinico  		» Ped. center
Linda Koster-Kamphuis  Nijmegen, Netherlands,
Radboud UMC  		» Ped. center
  Enrico Vidal  Padua, Italy,
Azienda Ospedaliera di Padova  		» Ped. center
  Thérésa Kwon  Paris, France,
Hospital Robert Debre  		» Ped. center
  Natalie Biebuyck  Paris, France,
Necker-Enfants Malades University Hospital  		» Ped. center
Olivia Gillion-Boyer  Paris, France,
Necker-Enfants Malades University Hospital  		» Ped. center
  Remi Salomon  Paris, France,
Necker-Enfants Malades University Hospital  		» Ped. center
Alberto Caldas Afonso  Porto, Portugal,
Centro Hospitalar Universitário do Porto  		» Ped. center
Maria do Sameiro Faria  Porto, Portugal,
Centro Hospitalar Universitário do Porto  		» Ped. center
Liliana Rocha  Porto, Portugal,
Centro Hospitalar Universitário do Porto  		» Ped. center
Nadezda Simankova  Prague, Czech Republic,
University Hospital Motol  		» Ped. center
Jakub Zieg  Prague, Czech Republic,
University Hospital Motol  		» Ped. center
Isabella Guzzo  Rome, Italy,
Rome, Bambino Gesù Children's Hospital  		» Ped. center
Francisco de la Cerda Ojeda  Sevilla, Spain,
Complejo Hospitalario Regional Virgen del Rocio  		» Ped. center
David Gonzalez Canalejo  Sevilla, Spain,
Complejo Hospitalario Regional Virgen del Rocio  		» Ped. center
Kajsa Asling Monemi  Stockholm, Sweden,
Karolinska University Hospital  		» Ped. center
Peter Barany  Stockholm, Sweden,
Karolinska University Hospital  		» Adult center
Maria Herthelius  Stockholm, Sweden,
Karolinska University Hospital  		» Ped. center
Bogna Niwinska-Faryna  Stockholm, Sweden,
Karolinska University Hospital  		» Ped. center
Stephane Decramer  Toulouse, France,
Toulouse, University Hospital  		» Ped. center
Stephanie Tellier  Toulouse, France,
Toulouse, University Hospital  		» Ped. center
Roberta Camilla  Turin, Italy,
AOU CSS di Torino - Regina Margherita Hospital  		» Ped. center
Bruno Gianoglio  Turin, Italy,
AOU CSS di Torino - Regina Margherita Hospital  		» Ped. center
Francesca Mattozzi  Turin, Italy,
AOU CSS di Torino - Regina Margherita Hospital  		» Ped. center
Licia Peruzzi  Turin, Italy,
AOU CSS di Torino - Regina Margherita Hospital  		» Ped. center
Silvia Pieretti  Turin, Italy,
AOU CSS di Torino - Regina Margherita Hospital  		» Ped. center
  Marc Lilien  Utrecht, Netherlands,
University Medical Centre  		» Ped. center
  Dmytro Ivanov  External Shupyk National Healthcare University of Ukraine, Kyiv 
Rukshana Shroff  External London, Great Ormond Street Hospital 
Kjell Tullus  External London, Great Ormond Street Hospital 
Manuel Armisen Arellano  Patient representative Alcer Spain 
Susana Carvajal Arjona  Patient representative http://hipofam.org/ (Hypomagnesemia) 
Uwe Korst  Patient representative Bundesverband Niere e.V. (Bundesverband-niere.de) 
  Claudia Sproedt  Patient representative https://cystinose-selbsthilfe.de/ (Cystinosis)