ERKNet

The European Rare Kidney Disease Reference Network

  

Workgroup Pediatric CKD & Dialysis

Our Pediatric CKD and Dialysis work group brings together experts from all over Europe, both from pediatric and adult dialysis centers, and also includes patient representatives.

We will develop guidelines and educational material for CKD and dialysis management in close collaboration with the ESPN working groups. Outcome Indicators will be defined and evaluated in cooperation with the SONG Initiative.

We will work with other ERKNet groups to develop webinars and CME meetings, in collaboration with dialysis nurses and dietitians, to provide a ‘holistic approach’ to the management of end-stage kidney disease.

Our experts will provide online consulting to European pediatric CKD and dialysis centers within the ERKNet Consortium, and extending to all European countries.

We will aim to define research goals in accordance with patients’ needs and provide a platform for common research projects within the group.


WorkGroup Members

  Rukshana Shroff  Speaker London, United Kingdom,
Great Ormond Street Hospital 
» Ped. center
  Claus Peter Schmitt  Co-Chair Heidelberg, Germany,
University Hospital 
» Ped. center
  Justine Bacchetta  Co-Chair Lyon, France,
Hôpital Femme Mère Enfant & Université de Lyon 
» Ped. center
  Jaap Groothoff  Amsterdam, Netherlands,
Amsterdam, Academic Medical Center (AMC) 
» Ped. center
  Michiel Oosterveld  Amsterdam, Netherlands,
Amsterdam, Academic Medical Center (AMC) 
» Ped. center
  Gema Ariceta  Barcelona, Spain,
Hospital Universitari Vall d'Hebron 
» Ped. center
  Larissa Kerecuk  Birmingham, United Kingdom,
Birmingham Women´s and Children´s Hospital 
» Ped. center
Lutz Weber  Cologne, Germany,
University Hospital 
» Ped. center
  Rainer Büscher  Essen, Germany,
University Children`s Hospital 
» Ped. center
  Ilona Zagozdzon  Gdansk, Poland,
University Clinical Centre Gdansk 
» Ped. center
Francesca Lugani  Genova, Italy,
Istituto Giannina Gaslini 
» Ped. center
  Enrico Verrina  Genova, Italy,
Istituto Giannina Gaslini 
» Ped. center
  Thomas Henne  Hamburg, Germany,
UKE University Hospital 
» Ped. center
  Sebastian Loos  Hamburg, Germany,
UKE University Hospital 
» Ped. center
  Anne Mühlig  Hamburg, Germany,
UKE University Hospital 
» Ped. center
Jun Oh  Hamburg, Germany,
UKE University Hospital 
» Ped. center
  Raphael Schild  Hamburg, Germany,
UKE University Hospital 
» Ped. center
  Florian Thiel  Hamburg, Germany,
UKE University Hospital 
» Ped. center
  Melk Anette  Hannover, Germany,
Hannover Medical School 
» Ped. center
  Dieter Haffner  Hannover, Germany,
Hannover Medical School 
» Ped. center
  Martin Kreuzer  Hannover, Germany,
Hannover Medical School 
» Ped. center
Franz Schaefer  Heidelberg, Germany,
University Hospital 
» Ped. center
  Tuula Hölttä  Helsinki, Finland,
Children´s Hospital, Helsinki University Hospital 
» Ped. center
  Timo Jahnukainen  Helsinki, Finland,
Children´s Hospital, Helsinki University Hospital 
» Ped. center
  Paula Seikku  Helsinki, Finland,
Children´s Hospital, Helsinki University Hospital 
» Ped. center
  Jahnukainen Timo  Helsinki, Finland,
Children´s Hospital, Helsinki University Hospital 
» Ped. center
  Elisa Ylinen  Helsinki, Finland,
Children´s Hospital, Helsinki University Hospital 
» Ped. center
  Noel Knops  Leuven, Belgium,
University Hospitals Leuven 
» Ped. center
  Wesley Hayes  London, United Kingdom,
Great Ormond Street Hospital 
» Ped. center
  Daljit Hothi  London, United Kingdom,
Great Ormond Street Hospital 
» Ped. center
  Kjell Tullus  London, United Kingdom,
Great Ormond Street Hospital 
» Ped. center
  Amrit Kaur  Manchester, United Kingdom,
Manchester University Foundation Trust 
» Ped. center
  Dean Wallace  Manchester, United Kingdom,
Manchester University Foundation Trust 
» Ped. center
  Fabio Paglialonga  Milano, Italy,
Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico 
» Ped. center
  Linda Koster-Kamhuis  Nijmegen, Netherlands,
Radboud UMC 
» Ped. center
  Enrico Vidal  Padova, Italy,
Azienda Ospedaliera di Padova 
» Ped. center
  Natalie Biebuyck  Paris, France,
Necker-Enfants Malades University Hospital 
» Ped. center
  Saoussen Krid  Paris, France,
Necker-Enfants Malades University Hospital 
» Ped. center
  Remi Salomon  Paris, France,
Necker-Enfants Malades University Hospital 
» Ped. center
  Isabella Guzzo  Rome, Italy,
Rome, Bambino Gesù Children's Hospital 
» Ped. center
  Margherita Baldassarri  Siena, Italy,
University Hospital 
» Adult center
Anna Maria Pinto  Siena, Italy,
University Hospital 
» Adult center
  Alessandra Renieri  Siena, Italy,
University Hospital 
» Adult center
Peter Barany  Stockholm, Sweden,
Karolinska University Hospital 
» Adult center
Maria Herthelius  Stockholm, Sweden,
Karolinska University Hospital 
» Ped. center
  Marc Lilien  Utrecht, Netherlands,
University Medical Centre 
» Ped. center
  Tara Raftery  External Children's HealthIreland (CHI) at Temple Street 
  Antonia Cabrera  Patient representative  
  Susana Carrajal  Patient representative  
  Claudia Sproedt  Patient representative FEDERG 
  Marieke van Meel  Patient representative  

European Reference Networks
ERKNet is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Commission.
For more information about the ERNs and the EU health strategy, please visit http://ec.europa.eu/health/ern