Workgroup Pediatric CKD & Dialysis
Our Pediatric CKD and Dialysis work group brings together experts from all over Europe, both from pediatric and adult dialysis centers, and also includes patient representatives.
We will develop guidelines and educational material for CKD and dialysis management in close collaboration with the ESPN working groups. Outcome Indicators will be defined and evaluated in cooperation with the SONG Initiative.
We will work with other ERKNet groups to develop webinars and CME meetings, in collaboration with dialysis nurses and dietitians, to provide a ‘holistic approach’ to the management of end-stage kidney disease.
Our experts will provide online consulting to European pediatric CKD and dialysis centers within the ERKNet Consortium, and extending to all European countries.
We will aim to define research goals in accordance with patients’ needs and provide a platform for common research projects within the group.
WorkGroup Members
| Rukshana Shroff | Speaker |
London, United Kingdom, Great Ormond Street Hospital |
» Ped. center | |
| Claus Peter Schmitt | Co-Chair |
Heidelberg, Germany, University Hospital |
» Ped. center | |
| Justine Bacchetta | Co-Chair |
Lyon, France, Hôpital Femme Mère Enfant & Université de Lyon |
» Ped. center | |
| Jaap Groothoff |
Amsterdam, Netherlands, Amsterdam, Academic Medical Center (AMC) |
» Ped. center | ||
| Michiel Oosterveld |
Amsterdam, Netherlands, Amsterdam, Academic Medical Center (AMC) |
» Ped. center | ||
| Gema Ariceta |
Barcelona, Spain, Hospital Universitari Vall d'Hebron |
» Ped. center | ||
| Larissa Kerecuk |
Birmingham, United Kingdom, Birmingham Women´s and Children´s Hospital |
» Ped. center | ||
 |
Lutz Weber |
Cologne, Germany, University Hospital |
» Ped. center | |
| Rainer Büscher |
Essen, Germany, University Children`s Hospital |
» Ped. center | ||
| Ilona Zagozdzon |
Gdansk, Poland, University Clinical Centre Gdansk |
» Ped. center | ||
 |
Francesca Lugani |
Genova, Italy, Istituto Giannina Gaslini |
» Ped. center | |
| Enrico Verrina |
Genova, Italy, Istituto Giannina Gaslini |
» Ped. center | ||
| Thomas Henne |
Hamburg, Germany, University Medical Center Hamburg-Eppendorf |
» Ped. center | ||
| Sebastian Loos |
Hamburg, Germany, University Medical Center Hamburg-Eppendorf |
» Ped. center | ||
| Anne Mühlig |
Hamburg, Germany, University Medical Center Hamburg-Eppendorf |
» Ped. center | ||
 |
Jun Oh |
Hamburg, Germany, University Medical Center Hamburg-Eppendorf |
» Ped. center | |
| Raphael Schild |
Hamburg, Germany, University Medical Center Hamburg-Eppendorf |
» Ped. center | ||
| Florian Thiel |
Hamburg, Germany, University Medical Center Hamburg-Eppendorf |
» Ped. center | ||
| Melk Anette |
Hannover, Germany, Hannover Medical School |
» Ped. center | ||
| Dieter Haffner |
Hannover, Germany, Hannover Medical School |
» Ped. center | ||
| Martin Kreuzer |
Hannover, Germany, Hannover Medical School |
» Ped. center | ||
 |
Franz Schaefer |
Heidelberg, Germany, University Hospital |
» Ped. center | |
| Tuula Hölttä |
Helsinki, Finland, Children´s Hospital, Helsinki University Hospital |
» Ped. center | ||
| Paula Seikku |
Helsinki, Finland, Children´s Hospital, Helsinki University Hospital |
» Ped. center | ||
| Jahnukainen Timo |
Helsinki, Finland, Children´s Hospital, Helsinki University Hospital |
» Ped. center | ||
| Elisa Ylinen |
Helsinki, Finland, Children´s Hospital, Helsinki University Hospital |
» Ped. center | ||
 |
Noel Knops |
Leuven, Belgium, University Hospitals Leuven |
» Ped. center | |
| Wesley Hayes |
London, United Kingdom, Great Ormond Street Hospital |
» Ped. center | ||
| Daljit Hothi |
London, United Kingdom, Great Ormond Street Hospital |
» Ped. center | ||
| Kjell Tullus |
London, United Kingdom, Great Ormond Street Hospital |
» Ped. center | ||
| Amrit Kaur |
Manchester, United Kingdom, Manchester University Foundation Trust |
» Ped. center | ||
| Dean Wallace |
Manchester, United Kingdom, Manchester University Foundation Trust |
» Ped. center | ||
| Fabio Paglialonga |
Milano, Italy, Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico |
» Ped. center | ||
| Linda Koster-Kamhuis |
Nijmegen, Netherlands, Radboud UMC |
» Ped. center | ||
| Enrico Vidal |
Padova, Italy, Azienda Ospedaliera di Padova |
» Ped. center | ||
| Natalie Biebuyck |
Paris, France, Necker-Enfants Malades University Hospital |
» Ped. center | ||
| Saoussen Krid |
Paris, France, Necker-Enfants Malades University Hospital |
» Ped. center | ||
| Remi Salomon |
Paris, France, Necker-Enfants Malades University Hospital |
» Ped. center | ||
| Isabella Guzzo |
Rome, Italy, Rome, Bambino Gesù Children's Hospital |
» Ped. center | ||
| Margherita Baldassarri |
Siena, Italy, University Hospital |
» Adult center | ||
 |
Anna Maria Pinto |
Siena, Italy, University Hospital |
» Adult center | |
| Alessandra Renieri |
Siena, Italy, University Hospital |
» Adult center | ||
| Kajsa Asling Monemi |
Stockholm, Sweden, Karolinska University Hospital |
» Ped. center | ||
 |
Peter Barany |
Stockholm, Sweden, Karolinska University Hospital |
» Adult center | |
| Marc Lilien |
Utrecht, Netherlands, University Medical Centre |
» Ped. center | ||
| Tanja Kersnik Levart | Affiliated partner |
Ljubljana, Slovenia, University Medical Centre |
» Ped. center | |
| Tara Raftery | External | Children's HealthIreland (CHI) at Temple Street | ||
| Antonio Cabrera Cantero | Patient representative | http://hipofam.org/ (Hypomagnesemia) | ||
| Susana Carvajal Arjona | Patient representative | http://hipofam.org/ (Hypomagnesemia) | ||
| Claudia Sproedt | Patient representative | https://cystinose-selbsthilfe.de/ (Cystinosis) | ||
| Marieke van Meel | Patient representative | http://nephceurope.eu (Nephrotic syndrome) |
