The European Rare Kidney Disease Reference Network


Taskforce Guidelines & Pathways

This Taskforce is concerned with guidelines, clinical practice recommendations, consensus papers, and diagnostic and therapeutic pathways in the field of rare kidney diseases. 

The Taskforce members guide and support the Workgroups in the following tasks: 

  • Evaluation of existing guidance documents using standardized assessment methodology
  • Gap Analysis to identify disease areas in need of guidance documents 
  • Development of new guidelines using state of the art EBM methodology

TaskForce Members

Dieter Haffner  Speaker
Hannover, Germany, Hannover Medical School  » Ped. center
Antonia Bouts  Amsterdam, Netherlands, Amsterdam, Academic Medical Center (AMC)  » Ped. center
Jaap Groothoff  Amsterdam, Netherlands, Amsterdam, Academic Medical Center (AMC)  » Ped. center
Gema Ariceta  Barcelona, Spain, Hospital Universitari Vall d'Hebron  » Ped. center
Arrigo Schieppati  Bergamo, Italy, Azienda Ospedaliera Papa Giovanni XXIII  » Adult center
Larissa Kerecuk  Birmingham, United Kingdom, Birmingham Women´s and Children´s Hospital  » Ped. center
Valentine Gillion  Brussels, Belgium, Cliniques universitaires Saint-Luc - UCL  » Adult center
Max Liebau  Cologne, Germany, University Hospital  » Ped. center
Lutz Weber  Cologne, Germany, University Hospital  » Ped. center
Anja Büscher  Essen, Germany, University Children`s Hospital  » Ped. center
Lorenzo Masieri  Florence, Italy, Meyer Children’s Hospital  » Ped. center
Paola Romagnani  Florence, Italy, Meyer Children’s Hospital  » Ped. center
Mario Schiffer  Hannover, Germany, Hannover Medical School  » Adult center
Franz Schaefer  Heidelberg, Germany, University Hospital  » Ped. center
Elke Wühl  Heidelberg, Germany, University Hospital  » Ped. center
Bert Bammens  Leuven, Belgium, University Hospitals Leuven  » Adult center
Elena Levtchenko  Leuven, Belgium, University Hospitals Leuven  » Ped. center
Rukshana Shroff  London, United Kingdom, Great Ormond Street Hospital  » Ped. center
Justine Bacchetta  Lyon, France, Hôpital Femme Mère Enfant & Université de Lyon  » Ped. center
Pierre Cochat  Lyon, France, Hôpital Femme Mère Enfant & Université de Lyon  » Ped. center
Rachel Lennon  Manchester, United Kingdom, Manchester University Foundation Trust  » Ped. center
Jens Koenig  Münster, Germany, University Hospital  » Ped. center
Giovanni Montini  Milano, Italy, Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico  » Ped. center
Neil Sheerin  Newcastle, United Kingdom, Royal Victoria Infirmary  » Adult center
Aude Servais  Paris, France, Necker-Enfants Malades University Hospital  » Adult center
Rosa Vargas-Poussou  Paris, France, Necker-Enfants Malades University Hospital  » Ped. center
Marina Vivarelli  Rome, Italy, Rome, Bambino Gesù Children's Hospital  » Ped. center
Maria Herthelius  Stockholm, Sweden, Karolinska University Hospital  » Ped. center
Simone Baldovino  Torino, Italy, San Giovanni Bosco Hospital and University of Torino  » Adult center
Dario Roccatello  Torino, Italy, San Giovanni Bosco Hospital and University of Torino  » Adult center
Marc Lilien  Utrecht, Netherlands, University Medical Centre  » Ped. center
Ce Hollak  External Department of Internal Medicine, Division of Endocrinology and Metabolism, Academic Medical Center, Amsterdam, Netherlands. 
Antoine Labbe  External Ophthalmology, Ambroise Paré hospital and Quinze-Vingt hospital, Paris 
Hong Liang  External Ophtalmology, Quinze-Vingt hospital, Paris 
Henri Lottmann  External Urology, Necker, France 
Roser Torra  External Servicio de Nefrología, Fundació Puigvert 
Marleen van den Heijkant  External Urology, Leuven 

European Reference Networks
ERKNet is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Commission.
For more information about the ERNs and the EU health strategy, please visit