ERKNet

The European Rare Kidney Disease Reference Network

  

Management of Polycystic Kidney Diseases from Childhood to Adulthood

Workshop held on December 2, 2017,  Leuven, Belgium

 

Cardiovascular phenotype in children and adults with ADPKD 

Francesco Emma, Rome, Italy 

 

Pathways involved in ADPKD

Barbara Ehrlich, New Haven, USA   

 

I´ll have my cysts with a bit of sugar, please

Detlef Bockenhauer, London, UK

 

Genetics of Polycystic Kidney Diseases 

Peter Harris, Rochester, USA  

 

Update on Tolvaptan for ADPKD

Vicente Torres, Rochester, USA   

 

Clinical Management of ADPKD in the era of Tolvaptan

Roman Müller, Cologne, Germany  

 

Ron Perrone, Boston, USA

 

Patient Engagement in ADPKD and ARPKD: The role of  patients organisations

Tess Harris, Patient Point of view, London, UK