ERKNet

The European Rare Kidney Disease Reference Network

  

ERKNet Reference Center

Institution

Barcelona, Hospital Universitari Vall d'Hebron

Center

Barcelona Hospital Universitari Vall d' Hebron

Description

The Pediatric Nephrology Department is part of the University Hospital Vall d’Hebron (VHUH) located in Barcelona, a Tertiary referral public center for Catalunya and many other areas of Spain. The HUVH is integrated by a Women-Children, General, and Trauma-Orthopedics Teaching Hospitals providing a multidisciplinary care involving all pediatric and adult medical and surgical sub-specialties. We also work closely with the Pediatric Urology Service who is accredited as national reference service for complex urologic surgeries in children and adolescents.

In our Service, we provide advanced and specialized care for patients with kidney disease from prenatal age to adolescence. We are highly specialized in renal replacement therapies such as dialysis, extracorporeal procedures (plasmapheresis, immune-absorption, and other aphaeresis) and kidney transplantation. We provide patient care 24 hours, 365 days per year, with pediatric nephrologists and dialysis nurses on-call. Since 1981, we have performed more than 400 pediatric kidney transplantations including infants and also combined liver-kidney transplantation in our program. Our center is accredited as regional and national reference and expert center for rare kidney diseases, severe chronic kidney disease and dialysis in children, pediatric kidney transplantation and complex glomerular diseases.

Our team includes referent renal nurses, clinical research nurse and staff, dieticians, psychologists and social support among others.

We are compromised in a growing transition program from pediatric care to adult nephrology. The aim of transition is to empower adolescents, family members and patient advocacy groups for transferring medical care from the pediatric nephrology to adult nephrology service at the same institution.

Further, we are part of the Renal Physiopathology Group at the Vall d'Hebrón Research Institute (VHIR) (http://en.vhir.org/portal1/grup-presentacio.asp?s=recerca&contentid=186828&idrefer=186829). Our research is focused in the field of Inherited Tubulopathies (Dent disease, Familial hypomagnesemia with hypercalciuria nephrocalcinosis), and rare kidney diseases. We are also founder members of RenalTube (http://renaltube.com/en/), a research network focused on improving diagnosis and knowledge of Primary Tubulopathies.

We participate in several clinical trials and academic research projects in the field of pediatric kidney and rare kidney diseases.

Specialists

 


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Gema Ariceta   (HCP Lead)  [e-mail]  [Show profile]

Further team members

 


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Victor Beltran   [e-mail]  [Show profile]
 


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Alejandro Cruz   [e-mail]  [Show profile]
 


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Gloria Fraga   [e-mail]  [Show profile]
 


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Enrique Lara   [e-mail]  [Show profile]
 


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Mercedes Lopez   [e-mail]  [Show profile]
 


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Carlos Moguel   [e-mail]  [Show profile]
 


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Marina Muñoz   [e-mail]  [Show profile]
 


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Hector Ríos   [e-mail]  [Show profile]

Disease expertise

» Hereditary glomerulopathies
» Immune glomerulopathies
» Tubulopathies
» Metabolic & stone disorders
» Thrombotic microangiopathies
» Obstructive nephropathies
» Pediatric CKD & dialysis
» Pediatric kidney transplantation

Task forces

» QoL & Transition
» Education & Training
» Registries & Outcomes
» Guidelines & Pathways

Contact

Gema Ariceta
E-mail: gariceta@vhebron.net

Homepage

» Barcelona Hospital Universitari Vall d' Hebron

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European Reference Networks
ERKNet is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Commission.
For more information about the ERNs and the EU health strategy, please visit http://ec.europa.eu/health/ern