The European Rare Kidney Disease Reference Network


ERKNet is the European Reference Network for Rare Kidney Diseases, a consortium of 38 expert pediatric and adult nephrology centers in 12 European countries providing healthcare to more than 40,000 patients with rare disorders of the kidneys.

The ERKNet partners offer top quality multidisciplinary healthcare for a wide range of rare kidney disorders. They uniformly apply clinical guidelines and pathways according to latest medical knowledge and strictly monitor the quality and outcomes of therapy across the Network.

Supported by the EU, ERKNet offers virtual consultation services to physicians throughout Europe who need advice for challenging cases with a rare kidney disease.  

ERKNet is dedicated to improve knowledge about rare kidney diseases among patients and healthcare professionals. We disseminate disease information via this website and by multiple education and training activities.  

ERKNet actively supports clinical research to improve diagnosis and risk prediction and advance the development of new therapies for patients with rare kidney disorders.  


ERKNet and EURenOmics Researchers meet in Paris

On July 11th, rare renal disease researchers from ERKNet and EURenOmics will get together at IMAGINE Institute in Paris to brainstorm about potential future research projects. The meeting will bring together basic researchers, geneticists and clinician scientists interested in rare kidney diseases. The group will review upcoming EU and transnational funding programmes and develop ideas for innovative collaborative proposals.