ERKNet

The European Rare Kidney Disease Reference Network

  

Research Project

Project Title:

CERTAIN Registry

Project Type:

Registry

Disease group(s):

Pediatric kidney transplantation

Project Summary:

Patient registries are a useful tool to measure outcomes and
compare the effectiveness of therapies in a specific patient
population. High data quality and completeness are therefore
advantageous for registry analysis. Data integration from
multiple sources may increase completeness of the data. The
pediatric renal transplantation registry CERTAIN identified
Eurotransplant (ET) and the Collaborative Transplant Study
(CTS) as possible partners for data exchange. Import and
export interfaces with CTS and ET were implemented. All
parties reached their projected goals and benefit from the
exchange.

Lead principal investigator(s):

Burkhard Toenshoff, Heidelberg
Lars Pape, Hannover

Co-investigator(s):

Lutz Weber, Cologne
Peter Hoyer, Essen
Jun Oh, Hamburg
D Stephen Marks, London
Martin Konrad, Münster
Nicholas Webb, Manchester
Luca dello Strologo, Rome
Grenda Ryzard, Warzwa

Project Period:

01/2012   -   12/2112

Sponsors:

Industry, Non-profit foundation

Project web page:

www.certain-registry.eu

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