Research Project

Project Title:

Natural history of patients with dRTA

Project Type:

Registry

Disease group(s):

Tubulopathies, Metabolic & stone disorders

Project Summary:

Based on ERKNet Registry platform we have built a detailed registry on distal renal tubular acidosis to collect data on long-term outcome of patients with his rare disease.

Lead principal investigator(s):

Elena Levtchenko, Leuven
,
Francesco Emma, Rome

Co-investigator(s):

Dieter Haffner, Hannover
Jun Oh, Hamburg
Rosa Vargas-Poussou, Paris
Fernando Santos, Oviedo

Project Period:

01/2020   -   01/2030

Project web page:

https://www.erknet.org/index.php?id=reg_status

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