Research Project

Project Title:

Quality of life and perceived barriers in persons with cystinuria

Project Type:

Observational Study, Enrolment ongoing

Disease group(s):

Metabolic & stone disorders

Project Summary:

Online survey investigating quality of life and perceived barriers to optimal care in people with cystinuria. Participants will be enrolled from an italian Facebook cystinuria group after signing informed consent and documenting the disease

Lead principal investigator(s):

Pietro Manuel Ferraro, Rome

Project Period:

01/2020   -   12/2020

Sponsors:

Local resources

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