ERKNet is excited to announce the launch of new surveys.
We encourage all members to participate and contribute to these important research initiatives.
For detailed information and access to the surveys, please visit our dedicated website.
Project: Long-term Prognosis and Potential Adverse Effects in CUBN Variants
• Lead Investigators: Elsa Ferriere and Aude Servais (Paris)
• Working Group: Hereditary Glomerulopathies
Project: Cystinuria and the availability of cystine-binding drugs
• Lead Investigators: Rik Olde Engberink (Amsterdam), Aude Servais (Paris), Elena Levtchenko (Amsterdam)
• Working Group: Metabolic Nephropathies
Project: Management of Antibiotic Prophylaxis in TMA Patients
• Lead Investigators: Nicole van de Kar (Nijmegen), Marina Vivarelli (Rome), Savino Sciascia (Torino)
• Working Group: Thrombotic Microangiopathies
Project: HLRCC Alliance
• Lead Investigators: Roman-Ulrich Müller, Jan Degenhardt (Cologne)
