The ERKNet Annual Meeting is an event where healthcare professionals and ePAGs spend 2 days discussing new research approaches, sharing knowledge and collaborating on new initiatives.
If you want to follow some sessions virtual please register here.
Events
Patient Partnership Webinar – Unlocking ERN Potential: Disease Specific Measures
Learn more about the European Reference Networks and how to unlock their potential for patients with rare diseases.
CNE International Conference
The CNE international conference is hosted every second year and brings together scientists, clinicians, families and adult patients. Attendees from…
7th International Workshop on Alport Syndrome
This workshop will spotlight the latest developments in Alport Syndrome.
EURORDIS Webinar: Guide to developing a Patient Journey
This webinar will be on March 20th, 2024 from 15.00 -16.00 CET
Exploring Patient Journeys: Enhancing healthcare services through patient-centered…