A EURORDIS webinar on "Patient Representatives Involvement in the ERN Evaluation" will be held on April 21, 2023. Find more information here:
https://www.eurordis.org/de/exchange-of-good-practice-patient-representatives-ern-evaluation/
EURODIS Webinar: Patient Representatives Involvement in the ERN Evaluation
Exchange of Good Practice webinar
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Events
Patient Partnership Webinar – Unlocking ERN Potential: Disease Specific Measures
Learn more about the European Reference Networks and how to unlock their potential for patients with rare diseases.
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This workshop will spotlight the latest developments in Alport Syndrome.
EURORDIS Webinar: Guide to developing a Patient Journey
This webinar will be on March 20th, 2024 from 15.00 -16.00 CET
Exploring Patient Journeys: Enhancing healthcare services through patient-centered…