Workgroup for autosomal dominant structural kidney disorders

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WorkGroup Members

Olivier Devuyst  Speaker Brussels, Belgium,
Cliniques universitaires Saint-Luc - UCL 
» Adult center
Djalila Mekahli  Co-Chair Leuven, Belgium,
University Hospitals Leuven 
» Ped. center
  Gloria Fraga  Barcelona, Spain,
Hospital Universitari Vall d'Hebron 
» Ped. center
  Giuseppe Remuzzi  Bergamo, Italy,
Azienda Ospedaliera Papa Giovanni XXIII 
» Adult center
Nathalie Demoulin  Brussels, Belgium,
Cliniques universitaires Saint-Luc - UCL 
» Adult center
Nathalie Godefroid  Brussels, Belgium,
Cliniques universitaires Saint-Luc - UCL 
» Adult center
  Yves Pirson  Brussels, Belgium,
Cliniques universitaires Saint-Luc - UCL 
» Adult center
Kathrin Burgmaier  Cologne, Germany,
University Hospital 
» Ped. center
  Volker Burst  Cologne, Germany,
University Hospital 
» Adult center
Max Liebau  Cologne, Germany,
University Hospital 
» Ped. center
  Roman-Ulrich Mueller  Cologne, Germany,
University Hospital 
» Adult center
Francesca Becherucci  Florence, Italy,
Meyer Children’s Hospital 
» Ped. center
Paola Romagnani  Florence, Italy,
Meyer Children’s Hospital 
» Ped. center
  Alicja Debska-Slizien  Gdansk, Poland,
University Clinical Centre Gdansk 
» Adult center
Magdalena Jankowska  Gdansk, Poland,
University Clinical Centre Gdansk 
» Adult center
  Iga Lesniewska  Gdansk, Poland,
University Clinical Centre Gdansk 
» Ped. center
Agnieszka Tarasewicz  Gdansk, Poland,
University Clinical Centre Gdansk 
» Adult center
  Monica Bodria  Genova, Italy,
Istituto Giannina Gaslini 
» Ped. center
Gian Marco Ghiggeri  Genova, Italy,
Istituto Giannina Gaslini 
» Ped. center
  Thurid Ahlenstiel  Hannover, Germany,
Hannover Medical School 
» Ped. center
Dieter Haffner  Hannover, Germany,
Hannover Medical School 
» Ped. center
Franz Schaefer  Heidelberg, Germany,
University Hospital 
» Ped. center
Burkhard Toenshoff  Heidelberg, Germany,
University Hospital 
» Ped. center
  Bert Bammens  Leuven, Belgium,
University Hospitals Leuven 
» Adult center
Kathleen Claes  Leuven, Belgium,
University Hospitals Leuven 
» Adult center
Elena Levtchenko  Leuven, Belgium,
University Hospitals Leuven 
» Ped. center
Jens Koenig  Münster, Germany,
University Hospital 
» Ped. center
Giovanni Montini  Milano, Italy,
IRCCS Ca' Granda Ospedale Maggiore Policlinico 
» Ped. center
Ilaria Luongo  Naples, Italy,
A.O. Santobono-Pausilipon 
» Ped. center
Gabriele Malgieri  Naples, Italy,
A.O. Santobono-Pausilipon 
» Ped. center
Carmine Pecoraro  Naples, Italy,
A.O. Santobono-Pausilipon 
» Ped. center
Luigi Annicchiarico Petruzzelli  Naples, Italy,
A.O. Santobono-Pausilipon 
» Ped. center
  Ernie Bongers  Nijmegen, Netherlands,
Radboud UMC 
» Adult center
Tom Nijenhuis  Nijmegen, Netherlands,
Radboud UMC 
» Adult center
Jack Wetzels  Nijmegen, Netherlands,
Radboud UMC 
» Adult center
  Elisa Benetti  Padova, Italy,
Azienda Ospedaliera di Padova 
» Ped. center
Lorenzo Calo  Padova, Italy,
Azienda Ospedaliera di Padova 
» Adult center
Gianni Carraro  Padova, Italy,
Azienda Ospedaliera di Padova 
» Adult center
Luisa Murer  Padova, Italy,
Azienda Ospedaliera di Padova 
» Ped. center
  Corinne Antignac  Paris, France,
Necker-Enfants Malades University Hospital 
» Ped. center
Emilie Cornec-Le Gall  Paris, France,
Necker-Enfants Malades University Hospital 
» Adult center
Olivia Gillion-Boyer  Paris, France,
Necker-Enfants Malades University Hospital 
» Ped. center
Laurence Heidet  Paris, France,
Necker-Enfants Malades University Hospital 
» Ped. center
Bertrand Knebelmann  Paris, France,
Necker-Enfants Malades University Hospital 
» Adult center
Aude Servais  Paris, France,
Necker-Enfants Malades University Hospital 
» Adult center
  Matteo Bargagli  Rome, Italy,
Gemelli Hospital 
» Adult center
Pietro Manuel Ferraro  Rome, Italy,
Gemelli Hospital 
» Adult center
Giuseppe Grandaliano  Rome, Italy,
Gemelli Hospital 
» Adult center
Francesco Emma  Rome, Italy,
Rome, Bambino Gesù Children's Hospital 
» Ped. center
Laura Massella  Rome, Italy,
Rome, Bambino Gesù Children's Hospital 
» Ped. center
Peter Barany  Stockholm, Sweden,
Karolinska University Hospital 
» Adult center
Bogna Niwinska-Faryna  Stockholm, Sweden,
Karolinska University Hospital 
» Ped. center
Stephane Decramer  Toulouse, France,
Toulouse, University Hospital 
» Ped. center
  Marc Lilien  Utrecht, Netherlands,
University Medical Centre 
» Ped. center
  Maarten Rookmaaker  Utrecht, Netherlands,
University Medical Centre 
» Adult center
Albertien vanEerde  Utrecht, Netherlands,
University Medical Centre 
» Ped. center
  John Sayer  External Institute of Genetic Medicine, Newcastle University 
  Arrigo Schieppati  External Mario Negri Institute 
Tess Harris  Patient representative https://pkdcharity.org.uk (PKD) 

European Reference Networks
ERKNet is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Commission.
For more information about the ERNs and the EU health strategy, please visit http://ec.europa.eu/health/ern